Welcome to Pooh's little corner of the web.
In February 2008 our lives took a turn in a different direction when our daughter Emily was diagnosed with a rare chromosome disorder called Chromosome 17q21.31 Microdeletion Syndrome.
I created this blog/website so that the parents and relatives of children diagnosed with Chromosome 17q21.31 Microdeletion Syndrome wouldn't feel alone.
We know there are other families out there wondering what this is all about. Although we don't have all the answers - we can share Emily's Journey - in hopes that others will gain some knowledge from our experiences.
The parents of a special child must also understand the extraordinary purpose for having their child. When asked by His disciples about who sinned causing a man's blindness, Jesus told them his condition was for God's glory.
See John 9
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